Cancer Treatment Affiliations
Here is a list of groups that do work related to cancer treatment that I’m a customer of, I’m affiliated with, I’ve joined, or conferences I’ve attended.
These are organizations I endorse.
Company | Description (Mission, Services) | My Relationship |
---|---|---|
23andMe | Direct-to-consumer genetic testing service; customers provide a saliva sample and answer questions to generate reports relating to the customer’s ancestry and genetic predispositions to health-related topics | Customer |
AllofUs | A research program to collect and study data from one million or more people living in the United States | Participant |
Cancer Commons | Identifies and leverages the latest cancer knowledge to help cancer patients and their treating physicians make optimal treatment decisions | Customer, on stage with them at the Precision Medicine World Conference to bring the patient point of view, article published |
Citizen | Tools to collect, summarize, and share individual medical records digitally, free of charge | Customer |
CONQUER Magazine | Forum for patients with cancer, family members, caregivers, survivors, nurse navigators, and other oncology team members to address the issues they face every day | CONQUERCam video published 2020 |
Dana-Farber Cancer Institute | A leading cancer treatment and research institution in Boston, Massachusetts | Patient |
Day Two | Analyzes the gut microbiome (glucose, from fecal samples) to personalize dietary recommendations | Customer |
GA4GH | An international consortium that is developing standards for responsibly collecting, storing, analyzing, and sharing genomic data in order to enable an "internet of genomics" | Attended 2019 conference |
The Journal of Precision Medicine | The first print publication to discuss the many key global issues surrounding the rapidly evolving landscape of precision medicine | Article to be published 2020 |
Leukemia and Lymphoma Society | Largest voluntary health organization dedicated to fighting blood cancers and improving the quality of life of patients and their families | Member |
MyCancerDB | A startup developing personalized services for people with a late-stage cancer diagnosis, including data hosting and help in accessing personalized, engineered therapies | Founding member (investor, customer, and advisor) |
Natera | A genetic testing company that operates a laboratory that can detect cancer in the blood | Customer |
Personalized Medicine Coalition | Promotes the understanding and adoption of personalized medicine concepts, services, and products through education, advocacy, and evidence development | Member, participant in working groups to bring the patient point of view, article published, attended conferences in 2018 and 2019 |
Precision Medicine World Conference | Largest conference for precision medicine | 2020 Speaker |
Psomagen | Offers cutting-edge whole exome, genome and RNA sequencing, and next-gen sequencing technology | Customer |
Society for Participatory Medicine | Promotes partnerships between patients, caregivers, and healthcare professionals | Member, attended 2019 conference; article published |
Viome | Analyzes the gut microbiome (RNA of fecal samples) to personalize dietary recommendations | Customer |
World Economic Forum | A non-governmental organization committed to improving the state of the world by engaging business, political, academic, and other leaders of society to shape global, regional, and industry agendas | Participant in working sessions on lowering data barriers; bring the patient point of view; article published |