Cancer Treatment Affiliations

Here is a list of groups that do work related to cancer treatment that I’m a customer of, I’m affiliated with, I’ve joined, or conferences I’ve attended.

These are organizations I endorse.

Company	Description (Mission, Services)	My Relationship
23andMe	Direct-to-consumer genetic testing service; customers provide a saliva sample and answer questions to generate reports relating to the customer’s ancestry and genetic predispositions to health-related topics	Customer
AllofUs	A research program to collect and study data from one million or more people living in the United States	Participant
Cancer Commons	Identifies and leverages the latest cancer knowledge to help cancer patients and their treating physicians make optimal treatment decisions	Customer, on stage with them at the Precision Medicine World Conference to bring the patient point of view, article published
Citizen	Tools to collect, summarize, and share individual medical records digitally, free of charge	Customer
CONQUER Magazine	Forum for patients with cancer, family members, caregivers, survivors, nurse navigators, and other oncology team members to address the issues they face every day	CONQUERCam video published 2020
Dana-Farber Cancer Institute	A leading cancer treatment and research institution in Boston, Massachusetts	Patient
Day Two	Analyzes the gut microbiome (glucose, from fecal samples) to personalize dietary recommendations	Customer
GA4GH	An international consortium that is developing standards for responsibly collecting, storing, analyzing, and sharing genomic data in order to enable an "internet of genomics"	Attended 2019 conference
The Journal of Precision Medicine	The first print publication to discuss the many key global issues surrounding the rapidly evolving landscape of precision medicine	Article to be published 2020
Leukemia and Lymphoma Society	Largest voluntary health organization dedicated to fighting blood cancers and improving the quality of life of patients and their families	Member
MyCancerDB	A startup developing personalized services for people with a late-stage cancer diagnosis, including data hosting and help in accessing personalized, engineered therapies	Founding member (investor, customer, and advisor)
Natera	A genetic testing company that operates a laboratory that can detect cancer in the blood	Customer
Personalized Medicine Coalition	Promotes the understanding and adoption of personalized medicine concepts, services, and products through education, advocacy, and evidence development	Member, participant in working groups to bring the patient point of view, article published, attended conferences in 2018 and 2019
Precision Medicine World Conference	Largest conference for precision medicine	2020 Speaker
Psomagen	Offers cutting-edge whole exome, genome and RNA sequencing, and next-gen sequencing technology	Customer
Society for Participatory Medicine	Promotes partnerships between patients, caregivers, and healthcare professionals	Member, attended 2019 conference; article published
Viome	Analyzes the gut microbiome (RNA of fecal samples) to personalize dietary recommendations	Customer
World Economic Forum	A non-governmental organization committed to improving the state of the world by engaging business, political, academic, and other leaders of society to shape global, regional, and industry agendas	Participant in working sessions on lowering data barriers; bring the patient point of view; article published