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Cancer Treatment Affiliations

Here is a list of groups that do work related to cancer treatment that I’m a customer of, I’m affiliated with, I’ve joined, or conferences I’ve attended.

These are organizations I endorse.

CompanyDescription (Mission, Services)My Relationship
23andMeDirect-to-consumer genetic testing service; customers provide a saliva sample and answer questions to generate reports relating to the customer’s ancestry and genetic predispositions to health-related topicsCustomer
AllofUsA research program to collect and study data from one million or more people living in the United StatesParticipant
Cancer CommonsIdentifies and leverages the latest cancer knowledge to help cancer patients and their treating physicians make optimal treatment decisionsCustomer, on stage with them at the Precision Medicine World Conference to bring the patient point of view, article published
CitizenTools to collect, summarize, and share individual medical records digitally, free of chargeCustomer
CONQUER MagazineForum for patients with cancer, family members, caregivers, survivors, nurse navigators, and other oncology team members to address the issues they face every dayCONQUERCam video published 2020
Dana-Farber Cancer InstituteA leading cancer treatment and research institution in Boston, MassachusettsPatient
Day TwoAnalyzes the gut microbiome (glucose, from fecal samples) to personalize dietary recommendationsCustomer
GA4GHAn international consortium that is developing standards for responsibly collecting, storing, analyzing, and sharing genomic data in order to enable an "internet of genomics"Attended 2019 conference
The Journal of Precision MedicineThe first print publication to discuss the many key global issues surrounding the rapidly evolving landscape of precision medicineArticle to be published 2020
Leukemia and Lymphoma SocietyLargest voluntary health organization dedicated to fighting blood cancers and improving the quality of life of patients and their familiesMember
MyCancerDBA startup developing personalized services for people with a late-stage cancer diagnosis, including data hosting and help in accessing personalized, engineered therapiesFounding member (investor, customer, and advisor)
NateraA genetic testing company that operates a laboratory that can detect cancer in the bloodCustomer
Personalized Medicine CoalitionPromotes the understanding and adoption of personalized medicine concepts, services, and products through education, advocacy, and evidence developmentMember, participant in working groups to bring the patient point of view, article published, attended conferences in 2018 and 2019
Precision Medicine World ConferenceLargest conference for precision medicine2020 Speaker
PsomagenOffers cutting-edge whole exome, genome and RNA sequencing, and next-gen sequencing technologyCustomer
Society for Participatory MedicinePromotes partnerships between patients, caregivers, and healthcare professionalsMember, attended 2019 conference; article published
ViomeAnalyzes the gut microbiome (RNA of fecal samples) to personalize dietary recommendationsCustomer
World Economic ForumA non-governmental organization committed to improving the state of the world by engaging business, political, academic, and other leaders of society to shape global, regional, and industry agendasParticipant in working sessions on lowering data barriers; bring the patient point of view; article published