In this episode of the Passionate Pioneers Podcast with Mike Biselli, Brad Power, the founder of CancerHacker Lab, joins to discuss the power of his collaborative community of medical experts and patients that have rallied… Read More »Passionate Pioneers Podcast: Supporting Activist Patients with Brad Power
Purpose: This document captures the story and lessons learned from the Bryce Olson Collaborative effort which ran from December 23, 2020, to March 11, 2021, as a record for future reference. Headline: An Extraordinary Group… Read More »Bryce Olson Collaborative Effort Case – December 2020 to March 2021
In a pioneering effort to align the health care system with the needs of an individual patient, Bradford Power, a patient leader on the steering committee for PMC’s More Than a Number patient education initiative, has partnered with a… Read More »In Pioneering Effort to Align Health Care System With Patient Needs, Collaborators Come Together to Crowdsource Ways to Improve Care for Patient Advocate Bryce Olson
I’ve been working with the World Economic Forum’s project on breaking barriers to sharing health data as a patient representative. Their target audience is mostly biotech researchers, who are focused on accelerating and improving the drug discovery… Read More »Why we need access to global health data: a cancer patient’s view
Today’s cancer patients desperately want access to faster and better treatment options, but despite success stories and great potential, the actual use of diagnostic tests and increased data about individuals to tailor their treatment is… Read More »Activating Patients: The Path to Personalizing Cancer Treatment
In this episode of the Precision Medicine Podcast, Brad Power, a courageous journalistic voice, and lymphoma survivor, shares why he’s fighting for greater access to precision medicine in clinical practice. Brad has also worked as a re-engineering… Read More »Re-engineering Precision Medicine: A Patient Perspective on the Gap Between Innovation and Application (Guest Podcast)
A cancer diagnosis can be shattering to an individual and his or her family and friends. The emotional earthquake can make everyone’s mind turn to mush. What does it mean? What do you do first?… Read More »What to Do When You Get a Cancer Diagnosis
Cancer treatment is not one-size-fits-all. Thanks to medical advancements, people receiving a cancer diagnosis might have many potential treatment options, ranging from established, “tried-and-true” treatments to experimental ones. But in many cases, it’s up to… Read More »How data can empower patients to personalize and improve their cancer treatment
Getting to your best cancer treatment depends on accessing lots of data about you and providing it to experts and expert systems to get their recommendations. Unfortunately, getting access to and managing the large volumes… Read More »Improve Your Cancer Treatment with Personalized Data
Summary: The potential of next-generation sequencing to revolutionize cancer treatment by enabling personalized therapies is still more promise than reality. Despite the best intentions of leaders at academic cancer centers, the translation of sequencing technology’s potential… Read More »Accelerating Personalization in Cancer Treatment: A Patient’s Perspective
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