Purpose: This document captures the story and lessons learned from the Bryce Olson Collaborative effort which ran from December 23, 2020, to March 11, 2021,
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Patients and their families are overwhelmed.
An explosion of new treatment options and health data about each individual (genomics, proteomics, imaging, monitors, new biomarkers, increased frequency of sensor readings) is overwhelming oncologists and patients. Patients and their friends and family feel lost and despondent.
Batch thinking and rigorous adherence to a safe standard of care optimizes for the population but can be suboptimal for an individual patient.
Separate services are hard to integrate, and competing incentives (profit, cost, safety) are often at odds with the patient outcomes. Data is hoarded and local.
Some proportion of the million plus people diagnosed each year with cancer are smart and sophisticated and will leave no stone unturned to access their best treatment options, paving the way for others to follow.
Thousands of entrepreneurs are launching startups to fix the breakdowns that cancer patient experience in the health system and to disrupt the status quo.
In Pioneering Effort to Align Health Care System With Patient Needs, Collaborators Come Together to Crowdsource Ways to Improve Care for Patient Advocate Bryce Olson
In a pioneering effort to align the health care system with the needs of an individual patient, Bradford Power, a patient leader on the steering committee for
Cancer patients and their caregivers experience many breakdowns in our health system: they are overwhelmed as they confront their mortality and struggle to access and